Neurofibromatosis Ontario

encompasses a set of distinct genetic disorders (NF1, NF2, Schwannomatosis) which cause benign and malignant nervous system tumours, however, can also affect multi systems including musculoskeletal, endocrine and organs . Neurofibromatosis may cause complications such as disfigurement, bone deformities, increased risk of cancer, blindness, hearing loss and pain, just to name a few. NF is variable, progressive and unpredictable.
Symptoms range from mild to severe. Although 50% of children born with Neurofibromatosis have inherited the disorder from a parent, NF can also occur spontaneously with no family history.

Our Mission is to provide support, information and assistance to families challenged by NF, work closely with clinical and research professionals who specialize in the treatment of NF, help fund research and provide information about Neurofibromatosis to physicians and the public to familiarize them with the disorder for early recognition and diagnosis.

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